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Support groups

For patients, parents and family members, coping with a serious illness, injury, or chronic medical condition can feel scary and lonely. The support groups found at Cook Children's can help.

Whether you are facing a long-or short-term challenge, you don't have to do it alone. The support groups found at Cook Children's offer comfort, understanding, strength and coping skills to help both the patient and family members manage the challenges of care and the stress of the child's diagnosis, condition, and treatment. Inside the safety of these support groups, members often find laughter, healing and, when needed, a shoulder to lean on.

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Adolescent and young adult program (cancer)

AYAs often feel out of place in a pediatric or adult clinic. Our vision is to provide a medical home just for them in the culture we provide. Groups meet monthly and events include education programs and opportunities to learn more about available resources. Additionally social activities are available so AYAs can network with each other, like family picnics, a Christmas party and sporting events. Click here to learn more.

Cochlear Implant support group

The group offers support and information for patients, parents and siblings. Meetings are held on the last Tuesday of each month at 5:30 p.m.

For more information contact Claire Schleicher at 682-885-1010.

Diabetes support groups

We offer programs and events for children and teens coping with diabetes. Also educational events for parents and family members. Please contact 682-885-7960for additional information on activities and resources for our diabetic patients and families, or click here for more information.

Endocrinology support groups

Support and events for patients and family members. Please contact 682-885-7960 for additional information on our events and support group programs. You can also learn more here

Epilepsy support groups

Each meeting begins with a specific topic presented by a professional with experience in caring for children with seizures. Following the speaker's presentation, there is time for open discussion so families can share their stories. Child care is provided for siblings and children under the age of six. There is no cost to participate. Dinner is provided at no charge.

We offer a support group for Children (ages 5-12) and Adolescents (ages 13-21). Each group is led by a Certified Child Life Specialist. The groups are held at the same time as the parent group. These child and adolescent support groups will help patients cope more effectively with their diagnosis and encourage socialization with peers who have a similar diagnosis.

Second Thursday, every other month, 6 – 7 p.m.; dinner served at 5:30 p.m.

For more information, contact, Julie Schmidt, patient liaison, at 682-885-7887, Angela Childers, RN at 682-885-5872 or Connie Mills at 817-437-8954. You can also learn about the many ways we support our epilepsy patients and their families by clicking here.

Gastroenterology & nutrition support groups

We offer support groups for IBD, motility and short gut, and celiac disease, as well as educational resources on a variety of issues. Please call 682-885-1990 for more information, or visit our page here.

G.U.T.S.

Designed to offer support to patients, parents, and siblings whose lives are affected by short gut and bowel and gut disorders, malabsorption conditions, functional disorders, pseudo obstruction disorders, adhesions and Hirschsprung's disease.

Group meets on the third Tuesday of every month at 6:00 p.m. For more information, please email Heather Finto, or call Courtney Watkins at 817-923-6358 or 817-808-0106.

Hearts and Souls (heart)

Support for parents of children with congenital heart defects. This parent-led group provides a way for parents to talk one-on-one with each other, sharing their experiences, concerns and questions.

Group meets the second Tuesday of every month at 6:30 p.m. For more information, please contact Amy Collins at 682-885-2764 or Beth Loviscek at 972-979-7350.

Hematology and Oncology Support

Designed for parents to find support and coping skills when dealing with a child's blood or cancer disorder.

This group meets every Thursday at 11:00 a.m. For more information, please contact Mandy Ebner at 682-885-3587.

H.O.P.E. Network (HIV and AIDS)

Support for patients who have been diagnosed with HIV and AIDS, and their families. The group meets once a month at 12:30 p.m.

Life After Cancer program

Groups meet monthly and our events include education programs, opportunities to learn more about resources available for survivors and to network with other survivors through social activities like family picnics, parties and sporting events. Call Lisa Bashore at 682-885-2125 or Maria Gardner at 817-939-1668 for more information on the Life After Cancer program. You can also learn more about Cook Children's Life After Cancer program here.

Links of Hope (emotions and behavior)

Group provides families and patients with information on emotional & behavioral issues:  ADD/ ADHD, depression, anxiety, bipolar disorder, or OCD. Meetings are monthly at 12:30 p.m. For more information, please contact Kate Strickland at 682-885-4829. You can learn more about Links of Hope and find additional resources here.

L.O.V.E. Club (neuroblastoma)

Information on neuroblastoma, as well as support for patients and families. Group meets on the second Tuesday of the month at 6:00 p.m. For more information, please contact Ali Hankins, or call Karen Debenport at 682-478-7288.

MaGIc: chron's & colitis

This group meets on the third Thursday of every month at 6:00 p.m. For more information contact Christina Guerrero.

MitoAction (mitrochondrial disease)

Patients and families receive information and support for mitrochondrial disease. Group meets twice year. For meeting dates and times, or to learn more, please contact Amanda McLanahan at 817-663-5874 or Joni Brewster at 817-807-5101.

Nephrology

Please contact the Nephrology Department at 682-885-4260 for additional information on future events. You can also learn more by clicking here.

Neurofibromatomis Family Support Group

Designed for patients (ages 0-18), their parents or caregivers, as well as siblings of all ages to attend. Dinner is provided. The group meets four times a year on Thursday evenings at 5:30 p.m. Meetings are free and include dinner. For additional details, meeting dates, or to learn more, visit our web page or contact Julie Schmidt, patient liaison, at 682-885-7887.

Neuro-oncology support

Evenings with Neuro-oncology provides networking opportunities for families as well as education about brain tumors and treatments. Meetings include dinner and activities for patients and their siblings. For more information call 682-885-7379. You'll also find additional information here.

NICUPS (neonatal intensive care)

Support for parents whose infants are in the Cook Children's neonatal intensive care unit. Group meets every other Tuesday at 1:00 p.m. For more information, please email Carolyn Cowling.

Noonan's Syndrome

Networking, information and support for parents of children with Noon's syndrome. To learn more about meeting dates, times and locations, please contact Laura Higginbothem at 817-201-9645.

SOS: Spotlight on Scoliosis

This group offers support and events for patients and family members. Please contact Amy Collins at 682-885-2764 for additional information on our events and support group programs. You can also learn more here.

T1D (diabetes)

Patients, parents and families are provided with information, networking and support as they learn to live with type 1 diabetes. Group meets on the second Tuesday of the month at 10:00 a.m. For more information, please email Megan Tiley at endo@cookchildrens.org, or call Alison Zettle at 914-263-8246.

Tourette Syndrome

An opportunity to visit with staff from Cook Children's Neurosciences Department. Kids, teens, and parents can meet others living with Tourette Syndrome and can share resources with other families. Group meets twice a year, once in June and once in October. For more information, please contact Kat Davitt at 682-885-5872.

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