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Neurofibromatosis Family Support Group

hand holdingThe Neurofibromatosis (NF) Family Support Group is designed for patients (ages 0-18), their parents or caregivers, as well as siblings of all ages to attend. Dinner is provided. For children under the age of 5, sitters will be available.

Cook Children's hosts two family support activities during the year. The first event is held at the beginning of May to kick off NF Awareness Month. An open panel of doctors and other experts are available to help answer questions. Families will also have an opportunity to visit with one another share resources with each other.

The second event is the Texas Neurofibromatosis Foundation NF Family Camp on September 11-13th. Camperships are available and are open to anyone.

Support group meetings

2015 meeting dates:


Cook Children's Medical Center
801 Seventh Avenue
Fort Worth, Texas 76104

Parking for parents of patients is free. Parking for other family members and visitors is $1 per hour.

Handicap access to the medical center is available from the first and third floor parking garage.

Facts about NF

Educational resources

For info or to RSVP – call 972.868.7944 or email

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