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Support Groups

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For patients, parents and family members, coping with a serious illness, injury, or chronic medical condition can feel scary and lonely. The support groups found at Cook Children's can help.

Whether you are facing a long- or short-term medical journey, you don't have to do it alone. The support groups found at Cook Children's offer comfort, understanding, strength and coping skills to help both the patient and family members manage the challenges of care and the stress of your child's diagnosis, condition and treatment. Inside the safety of these support groups, members often find laughter, healing and when needed, a shoulder to lean on.

Adolescent and Young Adult Program (cancer)

AYAs often feel out of place in a pediatric or adult clinic. Our vision is to provide a medical home just for them in the culture we provide. Groups meet monthly and events include education programs and opportunities to learn more about available resources. Additionally, social activities such as family picnics, a Christmas party and sporting events are available so AYAs can network with each other.

Crohn's Disease and Ulcerative Colitis

This group meets on the third Thursday of every month at 6:00 p.m.

For more information, contact Brenda Sonnier, brenda.sonnier@cookchildrens.org, or our Parents as Partners team, parents@cookchildrens.org or 682-885-7123.

Endocrinology support groups

Support and events for patients and family members.

Please contact 682-885-7960 for additional information on our events and support group programs.

Epilepsy support groups

Each meeting begins with a specific topic presented by a professional with experience in caring for children with seizures. Following the speaker's presentation, there is time for open discussion so families can share their stories. Child care is provided for siblings and children under the age of six. There is no cost to participate. Dinner is provided at no charge.

Depending on the age of participants in attendance we offer support groups for school-age children and teens. These are led by a Certified Child Life Specialist. The groups are held at the same time as the parent group. These child and adolescent support groups will help patients cope more effectively with their diagnosis and encourage socialization with peers who have a similar diagnosis.

Please note: all groups are dependent on having enough volunteers to ensure the safety of all the children. If you have a teen with additional support needs, please contact Kat Davitt at 682-885-5872 or kat.davitt@cookchildrens.org to discuss additional opportunities.

Second Thursday, every other month, 6-7 p.m.; dinner served at 5:30 p.m.

For more information, contact, Julie Schmidt , patient liaison, at 682-885-7887, or Amy Davis, RN at 682-885-7259. You can also learn about the many ways we support our epilepsy patients and their families by clicking here.

GI Support Group

Designed to offer support to all patients and families of patients with any gastrointestinal diagnosis except for Crohn's Disease and Ulcerative Colitis (there's a separate group for those families).

Group meets on the third Tuesday of every month at 6:00 p.m in Family Support meeting room A.

For more information, please contact Heather Finto or our Parents as Partners team, parents@cookchildrens.org or 682-885-1176 .

Hematology and Oncology support

Designed for parents to find support and coping skills when dealing with a child's blood or cancer disorder.

This group meets every Thursday at 11:00 a.m.

For more information, please contact Mandy Ebner at 682-885-3587.

Life After Cancer program

Groups meet monthly and our events include education programs, opportunities to learn more about resources available for survivors and to network with other survivors through social activities like family picnics, parties and sporting events.

Call Lisa Bashore at 682-885-2125 or Maria Gardner at 817-939-1668 for more information on the Life After Cancer program.

Links of Hope (emotions and behavior)

Links of Hope in Fort Worth

Group provides families and patients with information on emotional and behavioral issues: ADD/ ADHD, depression, anxiety, bipolar disorder or OCD.

Links of Hope, a parent resource and support group
Cook Children's Medical Center in pavilion classroom 6.
Meetings are on the fourth Tuesday of the month; no meeting in December.

For more information, please contact us at linksofhope@cookchildrens.org or 682-885-1176.

Dinner will be provided if you RSVP. Child care is not currently available.

Behavioral Health resources

Links of Hope in Southlake

Links of Hope provides adult care-givers of children with behavioral and emotional concerns such as ADHD, depression, OCD, ASD, with support and education. Our Links of Hope support group is led by a licensed social worker and there is no charge for attendance. For additional information, you may contact us at LinksOfHope-Southlake@CookChildrens.org.

Group meets on the 2nd Tuesday of the month from 9:30-10:30 at Southlake Urgent Care and Pediatric Specialties. Childcare is not provided.

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Listen Up!

The group offers support and information for patients, parents and siblings with any type of hearing loss.

For more information, contact Kristi Reed, kristi.reed@cookchildrens.org or 682-303-1252, or our Parents as Partners team, parents@cookchildrens.org or 682-885-1176.

L.O.V.E. Club

Information on neuroblastoma and other childhood cancers, as well as support for patients and families.

Group meets on the second Tuesday of the month at 6:00 p.m.

For more information, please contact Kelly Rand, kelly.rand@cookchildrens.org, or our Parents as Partners team, parents@cookchildrens.org, or 682-885-1176.

Mended Little Hearts

Support for parents of children with congenital heart defects. This parent-led group provides a way for parents to talk one-on-one with each other, sharing their experiences, concerns and questions.

Mended Little Hearts meeting

Pavilion classroom 6 (Cook Children's Medical Center, below Starbucks)
Group meets the second Monday of every month at 6:30 p.m.

For more information, please contact Sarah Lang at 682-885-4892, or our Parents as Partners team at parents@cookchildrens.org, or 682-885-1176.

Nephrology

Please contact the Nephrology department at 682-885-4260 for information on future events.

Neurofibromatomis Family Support Group

Designed for patients (ages 0-18), their parents or caregivers, as well as siblings of all ages to attend. Dinner is provided.

The group meets three times a year (February, August, and December) on Thursday evenings from 6:00-7:30 p.m. Meetings are free and include dinner.

Meetings are free and include dinner.

For additional details, meeting dates, or to learn more, contact Julie Schmidt, patient liaison, at 682-885-7887.

Neuro-oncology support

Evenings with Neuro-oncology provides networking opportunities for families as well as education about brain tumors and treatments.

Meetings include dinner and activities for patients and their siblings.

For more information call Stacy Bourden at 682-885-7379.

Sib2Sib program

Cook Children's Sib2Sib program provides services to siblings of children living with a chronic illness or life-changing disability, who are or have been patients at Cook Children's Medical Center.

Activities, events and meetings include:

  • Camp Courage
    These are fun-filled adventures away from the medical center. They provide opportunities for growth and building relationships with other siblings.
  • Teen and young adult field trips
    Fun outings give teens and young adults a healthy break.
  • Sibshops
    The history of Sibshops spans more than 25 years. Founded by Don Meyer, a pioneer in the sibling movement, the Sibshop model is dedicated to the life-long concerns of brothers and sisters of people with special health, developmental and mental health concerns. There are currently over 320 Sibshops worldwide, including one right here at Cook Children's in Fort Worth, Texas. To learn more about the history of Sibshops and what they offer check out siblingsupport.org.

    Your child can join the Cook Children's Sibshop for opportunities to meet other siblings, discuss common concerns unique to siblings of children with a chronic illness or life-changing disability, play games, enjoy arts and crafts, and have fun. It's a chance for us to celebrate siblings for who they are and all they do.

To learn more about the program or to register for the mailing list, call 682-885-5872, speak to your child's Child Life specialist or you can email sibprogram@cookchildrens.org.

SOS: Spotlight on Scoliosis

This group offers support and events for patients and family members.

Please contact Amy Collins at 682-885-2764 for additional information on our events and support group programs. You can also learn more here.

Tourette syndrome

An opportunity to visit with staff from Cook Children's Neurosciences department. Kids, teens, and parents can meet others living with Tourette syndrome and can share resources with other families.

Group meets three times a year in June, October and in December for a holiday party.

For more information, please contact Kat Davitt at 682-885-5872.

Trach

Support for parents whose children are in the Cook Children's NICU, PICU, or inpatient units with a tracheostomy.

Group meets on the fourth Monday of every month.

For more information, please contact Renee Lavelle, Jennifer Thomas, Lindsay Sikes or our Parents as Partners team, parents@cookchildrens.org or 682-885-7123.