Out of concern for our patients, families and staff, all support group meetings that are scheduled within the next 30 days are cancelled. This includes meetings held both on and off campus. As things change, we will reevaluate the situation and adjust meeting schedules accordingly. Thank you for understanding.
If your child is affected by a neural condition, we know things can get a bit complicated for your whole family. There are many challenges, and even fears, to face. But there are also answers from people who truly know what you're going through. And you'll find them here at Cook Children's.
We offer a variety of support groups that are open to families of our patients, caregivers, and also those families in our community whose children have neurological diagnoses. It's good to know that when things get complicated, the support teams at Cook Children's are here to help.
Cleft and Craniofacial Support Group
Cook Children's is proud to launch our Cleft and Craniofacial support group. This group is designed to support parents of our Cleft and Craniofacial program. This is your group and we want your input on the topics, guest speakers and information you'd like to have. So come share your ideas and enjoy some cookies, snacks and fellowship.
For more information or questions contact Vicki.Kelley@cookchildrens.org
Parking for parents of patients is free. Handicap access to the medical center is available from the first and third floor parking garage.
Epilepsy Family Support Group
Epilepsy Family Support Group presents general topics for discussion with activities for patients and families. Following each monthly general presentation, families will break-out into smaller diagnosis-specific groups to discuss personal experiences, share their stories, and build an appropriate support network. We encourage and welcome caregivers of patients who want to learn more about their child's neural condition while navigating the overwhelming maze of difficult decisions. Together, we will explore options and create better outcomes.
Our support groups help families:
- Meet others with similar experiences.
- Build a network of supportive relationships.
- Develop new skills to help you deal with daily challenges.
- Receive hope and encouragement.
Epilepsy support group meeting dates
- Returning in Fall 2022
What to know
The Epilepsy Family Support Group is designed for patients, their parents or caregivers, as well as siblings of all ages to attend.
Cook Children's hosts family support activities during the year. Support group meetings at the medical center include dinner, and sitters are available for children under the age of 6. Families will also have an opportunity to visit with one another and share resources with each other.
If you are interested in participating or would like more information, please call: 682-885-7763 or 682-885-7887.
Cook Children's Medical Center
801 Seventh Avenue
Fort Worth, Texas 76104
Parking for parents of patients is free. Parking for other family members and visitors is $1 per hour. Handicap access to the medical center is available from the first and third floor parking garage.
- Cook Children's Family Health Library
- Epilepsy Foundation
- Texas Neurofibromatosis Foundation
- Tourette Association
L.A.U.N.C.H. Headache and Migraine Support Group
Headache and migraine support for teens
Group meets monthly on the 2nd Tuesday
Meetings are held online
Parents as Partners
Cook Children's is working to include parents more than ever before and to offer a variety of programs to help us better understand the patient and family experience. Cook Children's offers several opportunities for parents to get involved, including:
- Family feedback groups: Participants are asked about their experiences and invited to share recommendations for improvement.
- Family Advisory Council: A select group of Cook Children's patient parents and staff meet monthly to review policies, initiate change and provide general feedback.
- Parent mentoring: One-on-one support and encouragement are provided to newly diagnosed families or families with similar conditions or problems.
Cook Children's Sib2Sib program offers a variety of supportive activities for siblings of children living with a chronic illness or a life changing injury. Programs include the following:
- Camp Courage day camp and Camp Courage Teen overnight camp
These are fun-filled adventures away from the medical center. They provide opportunities for growth and building relationships with other siblings.
- Teen and young adult field trips
- Sibshops – The history of Sibshops spans more than 25 years. Founded by Don Meyer, a pioneer in the sibling movement, the Sibshop model is dedicated to the life-long concerns of brothers and sisters of people with special health, developmental, and mental health concerns. There are currently over 320 Sibshops worldwide, including one right here at Cook Children's in Fort Worth, Texas. To learn more about the history of Sibshops and what they offer check out siblingsupport.org.
Your child can join the Cook Children's Sibshop for opportunities to meet other siblings, discuss common concerns unique to siblings of children with a chronic illness or life-changing disability, play games, enjoy arts and crafts, and have fun. It's a chance for us to celebrate siblings for who they are and all they do.
To learn more about the program or to register for the mailing list, call 682-885-5872, speak to your child's Child Life specialist or you can email firstname.lastname@example.org.
Stroke Support Group
This group offers support and events for families and caregivers of children that have suffered from a stroke.
The group meets quarterly.
We're here to help.
If your child has been diagnosed, you probably have lots of questions. We can help. If you would like to schedule an appointment, refer a patient or speak to our staff, please call our offices at 682-885-2500.