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</div> <div class="interior-page"> <div class="top-content-wrapper"> <div class="content-wrapper"> <div class="document-header"> <h1 data-epi-type="title">Cystic Fibrosis Education and Resources</h1> </div> <div class="content-area" data-epi-type="content"> <div class="right-content"> <div class="score-accordion section-menu-wrapper"> <div class="score-accordion-panel"> <div class="panel-heading"> <div class="panel-title"> <button type="button" class="accordion-button" data-target="#sectionMenu" aria-expanded="false" aria-controls="accordion1"> In This Section </button> </div> </div><div id="sectionMenu" class="panel-collapse collapse"> <div class="panel-body"> <div class="bg-lightgrey"> <ul class="main"> <li class="section-menu-item "> <a href="/services/pulmonology/" aria-label="Pulmonology" class="GTMMENU" target="_self"> Pulmonology </a> </li> </ul> <ul class="level-1"> <li class="section-menu-item "> <a href="/services/pulmonology/why-choose-us/" aria-label="Choosing Our Team" class="GTMMENU" target="_self"> Choosing Our Team </a> </li> <li class="section-menu-item "> <a href="/services/pulmonology/appointments-referrals/" aria-label="Appointments and Referrals" class="GTMMENU" target="_self"> Appointments and Referrals </a> </li> <li class="section-menu-item "> <a href="/services/pulmonology/contact-us/" aria-label="Contacts and Locations" class="GTMMENU" target="_self"> Contacts and Locations </a> </li> <li class="section-menu-item "> <a href="/services/pulmonology/specialty-programs/" aria-label="Specialty Programs" class="GTMMENU" target="_self"> Specialty Programs </a> </li> <li class="section-menu-item "> <a href="/services/pulmonology/conditions/" aria-label="Conditions Treated" class="GTMMENU" target="_self"> Conditions Treated </a> </li> <li class="section-menu-item "> <a href="/services/pulmonology/resources/" aria-label="Educational Resources" class="GTMMENU" target="_self"> Educational Resources </a> <ul class="level-2"> <li class="section-menu-item "> <a href="/services/pulmonology/resources/nutrition/" class="GTMMENU" target="_self"> Pulmonary Nutrition Resources </a> </li> <li class="section-menu-item "> <a href="/services/pulmonology/resources/cystic-fibrosis-nutrition-resources/" class="GTMMENU" target="_self"> Cystic Fibrosis Nutrition Resources </a> </li> <li class="section-menu-item active"> <a href="/services/pulmonology/resources/cystic-fibrosis-resources/" class="GTMMENU" target="_self"> Cystic Fibrosis Education and Resources </a> </li> </ul> </li> <li class="section-menu-item "> <a href="/services/pulmonology/contact-us/" aria-label="Contacts and Locations" class="GTMMENU" target="_self"> Contacts and Locations </a> </li> </ul> </div> </div> </div> </div> </div> </div> <div class="top-content"> <div class="rte-content"> <div class="rich-text"><div class="ms-webpart-zone ms-fullWidth"> <div id="MSOZoneCell_WebPartWPQ2" class="s4-wpcell-plain ms-webpartzone-cell ms-webpart-cell-vertical ms-fullWidth "> <div class="ms-webpart-chrome ms-webpart-chrome-vertical ms-webpart-chrome-fullWidth "> <div id="WebPartWPQ2" class="ms-WPBody "> <div class="ms-rtestate-field"> <p>When you/your child is coping with the lifelong challenges of cystic fibrosis, you need all the support you can get. The following resources will help you understand doctor-speak and link you to additional health information.</p> <div class="panel-group"> <div class="panel panel-default"> <div class="panel-heading clickable"> <h4 class="panel-title">Insurance information</h4> </div> <div class="panel-body"> <p>Much has changed in the last couple of years. To learn more about coverage, <a title="Health insurance information" href="/patients-families/billing-insurance/health-insurance-guide/">visit our health insurance information pages</a>.</p> <p>Learn more about the Affordable Care Act and the healthcare exchange at <a href="https://www.healthcare.gov/how-can-I-get-coverage-outside-of-open-enrollment">HealthCare.gov</a>.</p> <p>Did you know you might be eligible for additional assistance through the State of Texas? The CSHCN Services Program was specifically designed for children with special health-care needs, but it also includes persons of all ages who have cystic fibrosis. <a href="http://www.dshs.state.tx.us/cshcn/">You can learn more here</a>.</p> <p>Cook Children's Health Plan is designed to help parents of children who are at Cook Children's, or would like to have him or her seen at Cook Children's, but might not qualify for Medicaid and are unable to afford any other type of health insurance. We are happy to help. For more information or assistance getting your child covered right away, <a href="http://www.cookchp.org/English/Pages/default.aspx">click here now</a>.</p> </div> </div> <!-- end panel --> <div class="panel panel-default"> <div class="panel-heading clickable"> <h4 class="panel-title">Prescription assistance</h4> </div> <div class="panel-body"> <p>Cook Children's Retail Pharmacy offers payment assistance for families who qualify. You can speak to a pharmacist by calling <a href="tel:682-885-314">682-885-3142</a>. We also invite you to <a href="/services/pharmacy/">learn more here</a>.</p> <p>Prescription assistance programs – a listing of different programs that can help with cost of medications <a href="/siteassets/documents/specialties/pulmonology/prescription-assistance-programs2.pdf">can be found here</a>.</p> <p>The NBS benefits program offers assistance through the State of Texas for qualified residents – <a href="/siteassets/documents/specialties/pulmonology/nbs-patient-handout2.pdf">click here to learn more</a>.</p> </div> </div> <!-- end panel --> <div class="panel panel-default"> <div class="panel-heading clickable"> <h4 class="panel-title">Cystic fibrosis organizations</h4> </div> <div class="panel-body"> <p>Sometimes it's hard to tell which information on the Internet is actually helpful. We trust the following sites to provide useful information to parents, kids, teens and adults seeking more information on cystic fibrosis:</p> <ul class="marginRight"> <li><a href="http://www.esiason.org">www.esiason.org</a><br />Boomer Esiason Foundation: foundation information, fund raising, events, and newsletter</li> <li><a href="http://www.happyheartfamilies.com">www.happyheartfamilies.com</a><br />Practical parenting tools for children with CF</li> <li><a href="http://www.cff.org">www.cff.org</a><br />Cystic Fibrosis Foundation: Wealth of information on CF and CF research. Standards of care are listed on this website.</li> <li><a href="http://www.cfww.org">www.cfww.org</a><br />Cystic Fibrosis Worldwide: Newsletters, links, updates on CF. International platform for the exchange of information.</li> <li><a href="http://www.iacfa.org">www.iacfa.org</a><br />International CF Adult Organization: For adults with CF throughout the world</li> <li><a href="http://www.cfliving.com">www.cfliving.com </a><br />Resources and knowledge on CF</li> <li><a href="http://www.respiratorycare.medscape.com">www.respiratorycare.medscape.com</a><br />News and information on pulmonary issues</li> <li><a href="http://www.mycysticfibrosis.com">www.mycysticfibrosis.com</a><br />My Cystic Fibrosis: Helpful information on CF</li> <li><a href="http://www.cfri.org">www.cfri.org</a><br />Cystic Fibrosis Research Inc: Help to fund and sponsor CF research. Provide educational programs and personal support</li> <li><a href="http://www.kidshealth.org">www.kidshealth.org</a><br />General information on CF and children's health</li> <li><a href="https://www.ncbi.nlm.nih.gov/pubmedhealth/PMHT0022782/">https://www.ncbi.nlm.nih.gov</a> <br />National Library of Medicine: Articles on CF research and national medical news</li> <li><a href="https://medlineplus.gov/cysticfibrosis.html" target="_blank" rel="noopener">https://medlineplus.gov/cysticfibrosis.html</a><br />Medline Plus: Articles on CF research and national medical news</li> <li><a href="https://www.chef4cf.com/" target="_blank" rel="noopener">https://www.chef4cf.com/</a> <br />CF Chef high calorie recipes designed for patients with CF</li> </ul> </div> </div> <!-- end panel --> <div class="panel panel-default"> <div class="panel-heading clickable"> <h4 class="panel-title">Support groups</h4> </div> <div class="panel-body"> <ul class="marginRight"> <li><a href="http://www.r4stars.org">www.r4stars.org</a><br />Reach for the Stars: Provides resources, knowledge, and support to those with CF</li> <li><a href="http://www.cystic-L.org">www.cystic-L.org</a><br />Cystic-L: Information and support. Free email service dedicated to the exchange of information and support on CF.</li> <li><a href="http://www.pacer.org/">www.pacer.org/</a><br />Pacer: MN foundation for chronically ill patients and families.</li> <li><a href="http://www.cysticfibrosis.com">www.cysticfibrosis.com</a><br />"Support. Education. Hope." For those with CF</li> <li><a href="http://www.starbright.org">www.starbright.org</a><br />Star Bright Foundation: Provides education, family activities, and entertainment to seriously ill children</li> <li><a href="http://www.theBreathingRoom.org">www.theBreathingRoom.org</a><br />Breathing Room: "The art of living with CF"</li> <li>DFW CF Families Facebook Page<br />Connecting DFW CF families on facebook</li> </ul> <h4 class="blue">Legal support</h4> <p>The CF Legal Information Hotline provides free information about the laws that protect the rights of people with cystic fibrosis. <a href="/siteassets/documents/specialties/pulmonology/cf-legal-hotline2.pdf">You can learn more here</a>.</p> <h4 class="blue">CF scholarship information</h4> <p>If you are headed to college, in college, or are returning to finish your degree or add a new one, <a href="/siteassets/documents/specialties/pulmonology/scholarship-list2.pdf">you'll find a great resource here</a>.</p> </div> </div> <!-- end panel --> <div class="panel panel-default"> <div class="panel-heading clickable"> <h4 class="panel-title">Newsletters</h4> </div> <div class="panel-body"> <p>To catchup and stay up on all the latest happenings in the CF world and at the Cook Children's Cystic Fibrosis Center, be sure to check our newsletters.</p> <ul class="marginRight"> <li><a href="/siteassets/documents/specialties/pulmonology/newsletter-winter-20182.pdf">Winter 2018</a></li> <li><a href="/siteassets/documents/specialties/pulmonology/newsletter-summer-20172.pdf">Summer 2017</a></li> <li><a href="/siteassets/documents/specialties/pulmonology/newsletter-spring-20172.pdf">Spring 2017</a></li> <li><a href="/siteassets/documents/specialties/pulmonology/summer-newsletter-20162.pdf">Summer 2016</a></li> <li><a href="/siteassets/documents/specialties/pulmonology/newsletter-specialedition-20152.pdf">Special Edition 2015</a></li> <li><a href="/siteassets/documents/specialties/pulmonology/newsletter-fall-20152.pdf">Fall 2015</a></li> <li><a href="/siteassets/documents/specialties/pulmonology/newsletter-spring-20152.pdf">Spring 2015</a></li> <li><a href="/siteassets/documents/specialties/pulmonology/newsletter-specialedition-20142.pdf">Special Edition 2014</a></li> <li><a href="/siteassets/documents/specialties/pulmonology/newsletter-fallwinter-20142.pdf">Fall/Winter 2014</a></li> <li><a href="/siteassets/documents/specialties/pulmonology/spring_newsletter_20142.pdf">Spring 2014</a></li> <li><a href="/siteassets/documents/specialties/pulmonology/fall_newsletter-20132.pdf">Fall 2013</a></li> <li><a href="/siteassets/documents/specialties/pulmonology/spring_newsletter_20132.pdf">Spring 2013</a></li> <li><a href="/siteassets/documents/specialties/pulmonology/winter_newsletter_20132.pdf">Winter 2013</a></li> <li><a href="/siteassets/documents/specialties/pulmonology/fall_newsletter_20122.pdf">Fall 2012</a></li> <li><a href="/siteassets/documents/specialties/pulmonology/winter_newsletter_20112.pdf">Winter 2011</a></li> <li><a href="/siteassets/documents/specialties/pulmonology/fall_newsletter-20112.pdf">Fall 2011</a></li> <li><a href="/siteassets/documents/specialties/pulmonology/summer_newsletter_20112.pdf">Summer 2011</a></li> <li><a href="/siteassets/documents/specialties/pulmonology/spring-newsletter-2011.pdf">Spring 2011</a></li> <li><a href="/siteassets/documents/specialties/pulmonology/fall_newsletter-20102.pdf">Fall 2010</a></li> <li><a href="/siteassets/documents/specialties/pulmonology/summer_newsletter_20102.pdf">Summer 2010</a></li> <li><a href="/siteassets/documents/specialties/pulmonology/spring-newsletter-2010.pdf">Spring 2010</a></li> <li><a href="/siteassets/documents/specialties/pulmonology/fall_newsletter-20092.pdf">Fall 2009</a></li> <li><a href="/siteassets/documents/specialties/pulmonology/summer_newsletter_20092.pdf">Summer 2009</a></li> </ul> </div> </div> <!-- end panel --></div> <!-- end panel group --> <h3>We're here to help.</h3> <p>If you have been told your child might have CF, we know you have lots of questions. We can help. To schedule an appointment, refer a patient or speak to our staff, please call our offices at <a href="tel:682-885-6299">682-885-6299</a>. After hours and on weekends/holidays, call <a href="tel:682-885-4000">682-885-4000</a> and ask the operator to page the pulmonologist on call.</p> <p><a class="btn btn-contact score-button primary" title="Call 682-885-6299" href="tel:682-885-6299">Contact us at 682-885-6299</a></p> </div> </div> </div> </div> </div></div> </div> </div> </div> </div> </div> </div> </main> <script defer="defer" src="/Util/Find/epi-util/find.js"></script> <script> document.addEventListener('DOMContentLoaded',function(){if(typeof FindApi === 'function'){var api = new FindApi();api.setApplicationUrl('/');api.setServiceApiBaseUrl('/find_v2/');api.processEventFromCurrentUri();api.bindWindowEvents();api.bindAClickEvent();api.sendBufferedEvents();}}) </script> </main> <footer class="footer" > <div class="footer-wrapper bg-lightgrey"> <div data-react-component="FooterNavigation" data-props='{"upperFooter":{"upperFooterCol1":[{"childPages":[{"highlighted":true,"indented":false,"title":"Our 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