Active Research
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An Open-label, Multi-center, Phase IV, Rollover Study for Patients with Sickle Cell Disease who have Completed a prior Novartis-Sponsored Crizanlizumab Study
Primary Investigator: Johnson MD, Clarissa
IRB ID: 2021-060 (OPEN)
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ASH Data Hub: A Multi-Center Data Hub of Individuals Living with Hematologic Disease
Primary Investigator: Johnson MD, Clarissa
IRB ID: 2022-116 (OPEN)
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CHAT: A Multi-Institutional Children’s Healthcare Advancements in Thrombosis Registry
Primary Investigator: Torres MD, Marcela
IRB ID: 2022-077 (OPEN)
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Cook Children’s Health Care System Stroke and Thrombosis Registry
Primary Investigator: Torres MD, Marcela
IRB ID: 2020-037 (OPEN)
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Focal Cerebral Arteriopathy Steroid (FOCAS) Trial (Comparative Effectiveness Trial)
Primary Investigator: Torres MD, Marcela
IRB ID: 2023-029 (OPEN)
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Functional Characterization of Children with Chronic Venous Thromboembolic Disease
Primary Investigator: Torres MD, Marcela
IRB ID: 2021-065 (OPEN)
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International Paediatric Stroke Study-Towards the Establishment of Standards of Practice and the Initiation of Multi-Center, Multi-National Clinical Trials for Neonates and Children with Stroke (IPSS)
Primary Investigator: Torres MD, Marcela
IRB ID: 2012-008 (OPEN)
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IPIG 5674-0001 Observational Registry Protocol: The International PNH Interest Group PNH Registry
Primary Investigator: Beam MD, Donald
IRB ID: 2022-093 (OPEN)
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NN7415-4616: Open-label study investigating efficacy, safety and pharmacokinetics of concizumab prophylaxis in children below 12 years with haemophilia A or B with or without inhibitors
Primary Investigator: McCavit MD, Timothy
IRB ID: 2024-012 (OPEN)
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Observational study of pediatric thrombotic disease: the Throm-PED registry
Primary Investigator: Torres MD, Marcela
IRB ID: 2021-085 (OPEN)
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Project DANCES (Diversity in Aya caNCEr Survivors)
Primary Investigator:
IRB ID: 2024-048 (OPEN)
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RBDD-PLG Project; International Retrospective and Prospective Study of Individuals affected with Hypoplasminogenemia
Primary Investigator: Torres MD, Marcela
IRB ID: 2019-028 (OPEN)
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Seizures and Children's Outcomes After Stroke (SCOUTS)
Primary Investigator: Herring, Rachelle
IRB ID: 2022-067 (OPEN)
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The American Thrombosis and Hemostasis Network (ATHN) National Web Tracker
Primary Investigator: Sanders MD, Joann
IRB ID: 2011-160 (OPEN)
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X4P-001-110: A Phase 3, randomized, double-blind, placebo-controlled, multicenter study of mavorixafor in participants with congenital and acquired primary autoimmune and idiopathic chronic neutropenic disorders who are experiencing recurrent and/or serious infections.
Primary Investigator: Beam MD, Donald
IRB ID: 2024-091 (OPEN)