Cystic Fibrosis Education and Resources
When you/your child is coping with the lifelong challenges of cystic fibrosis, you need all the support you can get. The following resources will help you understand doctor-speak and link you to additional health information.
Insurance information
Much has changed in the last couple of years. To learn more about coverage, visit our health insurance information pages.
Learn more about the Affordable Care Act and the healthcare exchange at HealthCare.gov.
Did you know you might be eligible for additional assistance through the State of Texas? The CSHCN Services Program was specifically designed for children with special health-care needs, but it also includes persons of all ages who have cystic fibrosis. You can learn more here.
Cook Children's Health Plan is designed to help parents of children who are at Cook Children's, or would like to have him or her seen at Cook Children's, but might not qualify for Medicaid and are unable to afford any other type of health insurance. We are happy to help. For more information or assistance getting your child covered right away, click here now.
Prescription assistance
Cook Children's Retail Pharmacy offers payment assistance for families who qualify. You can speak to a pharmacist by calling 682-885-3142. We also invite you to learn more here.
Prescription assistance programs – a listing of different programs that can help with cost of medications can be found here.
The NBS benefits program offers assistance through the State of Texas for qualified residents – click here to learn more.
Cystic fibrosis organizations
Sometimes it's hard to tell which information on the Internet is actually helpful. We trust the following sites to provide useful information to parents, kids, teens and adults seeking more information on cystic fibrosis:
- www.esiason.org
Boomer Esiason Foundation: foundation information, fund raising, events, and newsletter - www.happyheartfamilies.com
Practical parenting tools for children with CF - www.cff.org
Cystic Fibrosis Foundation: Wealth of information on CF and CF research. Standards of care are listed on this website. - www.respiratorycare.medscape.com
News and information on pulmonary issues - www.cfri.org
Cystic Fibrosis Research Inc: Help to fund and sponsor CF research. Provide educational programs and personal support - All about cystic fibrosis
General information on CF and children's health - https://medlineplus.gov/cysticfibrosis.html
Medline Plus: Articles on CF research and national medical news - https://www.chef4cf.com/
CF Chef high calorie recipes designed for patients with CF
Support groups
- www.pacer.org/
Pacer: MN foundation for chronically ill patients and families. - DFW CF Families Facebook Page
Connecting DFW CF families on facebook
Legal support
The CF Legal Information Hotline provides free information about the laws that protect the rights of people with cystic fibrosis. Find help here.
CF scholarship information
If you are headed to college, in college, or are returning to finish your degree or add a new one, you'll find a great resource here.
We're here to help.
If you have been told your child might have CF, we know you have lots of questions. We can help. To schedule an appointment, refer a patient or speak to our staff, please call our offices at 682-885-6299. After hours and on weekends/holidays, call 682-885-4000 and ask the operator to page the pulmonologist on call.