Hematology
When most of us think of blood, we think of the red stuff in our veins, or boo boos that are quickly fixed with a bandage and a kiss. But for some kids and teens, there's a lot more to it.
Unless your child is diagnosed with a blood disorder or disease, chances are you've never given much thought to the word hematology or all of the functions of blood that our bodies depend upon. But if your child has been diagnosed with a blood disease or disorder, Cook Children's hematology team is here to help make things better.
Living with Hemophilia: Stories of Resilience
Any time a child gets a bump, cut or bruise, it's a scary moment for parents. Most of the time a bandage will mend things, but for a parent whose child has a bleeding disorder like hemophilia, it's a slightly different story.
Common referral diagnoses:
Cook Children's hematology team cares for children and teenagers with diseases of the blood that are non-malignant. Due to the fact that the blood system and clotting system are so complex, there is a broad range of disorders and diseases evaluated and treated by our hematology physicians. These include, but are not limited to:
- Anemia
- Bone marrow failure syndrome
- Deep venous thrombosis
- Hemophilia
- Neutropenia
- Pulmonary embolism
- Comprehensive Stroke and thrombosis clinic
- Sickle cell comprehensive program
- Thrombocytopenia
- Other inherited or acquired bleeding disorders
In the past, many of these diseases and disorders would have prevented kids from participating in daily activities. Today, the hematology team at Cook Children's evaluates each case and, based on the condition he or she is diagnosed with, the patient is provided with an individualized treatment plan and guidelines to maximize a healthy lifestyle and minimize hospitalization.
Every tissue in the body depends upon the blood. For that reason, your care team has experience in multiple specialties and includes physicians, a nurse practitioner, dedicated nursing staff, a hematology data coordinator and support services such as Child Life, social services, physical therapy and neuropsychology.
Our specialty care team
Additional team members
Grace Gongidi
PA-C
We are here to help.
If your child has been diagnosed, you probably have lots of questions. We can help. If you would like to schedule an appointment, refer a patient or speak to our staff, please call our offices at 682-885-4007.
Active research studies
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An Open-label, Multi-center, Phase IV, Rollover Study for Patients with Sickle Cell Disease who have Completed a prior Novartis-Sponsored Crizanlizumab Study
Primary Investigator: Johnson MD, Clarissa
IRB ID: 2021-060 (OPEN)
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ASH Data Hub: A Multi-Center Data Hub of Individuals Living with Hematologic Disease
Primary Investigator: Johnson MD, Clarissa
IRB ID: 2022-116 (OPEN)
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CHAT: A Multi-Institutional Children’s Healthcare Advancements in Thrombosis Registry
Primary Investigator: Torres MD, Marcela
IRB ID: 2022-077 (OPEN)
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Cook Children’s Health Care System Stroke and Thrombosis Registry
Primary Investigator: Torres MD, Marcela
IRB ID: 2020-037 (OPEN)
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Focal Cerebral Arteriopathy Steroid (FOCAS) Trial (Comparative Effectiveness Trial)
Primary Investigator: Torres MD, Marcela
IRB ID: 2023-029 (OPEN)
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Functional Characterization of Children with Chronic Venous Thromboembolic Disease
Primary Investigator: Torres MD, Marcela
IRB ID: 2021-065 (OPEN)
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International Paediatric Stroke Study-Towards the Establishment of Standards of Practice and the Initiation of Multi-Center, Multi-National Clinical Trials for Neonates and Children with Stroke (IPSS)
Primary Investigator: Torres MD, Marcela
IRB ID: 2012-008 (OPEN)
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IPIG 5674-0001 Observational Registry Protocol: The International PNH Interest Group PNH Registry
Primary Investigator: Beam MD, Donald
IRB ID: 2022-093 (OPEN)
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NN7415-4616: Open-label study investigating efficacy, safety and pharmacokinetics of concizumab prophylaxis in children below 12 years with haemophilia A or B with or without inhibitors
Primary Investigator: McCavit MD, Timothy
IRB ID: 2024-012 (OPEN)
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Observational study of pediatric thrombotic disease: the Throm-PED registry
Primary Investigator: Torres MD, Marcela
IRB ID: 2021-085 (OPEN)
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RBDD-PLG Project; International Retrospective and Prospective Study of Individuals affected with Hypoplasminogenemia
Primary Investigator: Torres MD, Marcela
IRB ID: 2019-028 (OPEN)
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Seizures and Children's Outcomes After Stroke (SCOUTS)
Primary Investigator: Herring, Rachelle
IRB ID: 2022-067 (OPEN)
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The American Thrombosis and Hemostasis Network (ATHN) National Web Tracker
Primary Investigator: Sanders MD, Joann
IRB ID: 2011-160 (OPEN)
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X4P-001-110: A Phase 3, randomized, double-blind, placebo-controlled, multicenter study of mavorixafor in participants with congenital and acquired primary autoimmune and idiopathic chronic neutropenic disorders who are experiencing recurrent and/or serious infections.
Primary Investigator: Beam MD, Donald
IRB ID: 2024-091 (OPEN)