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Education and Resources

If your child has a serious illness or long-term condition, palliative care provides an extra layer of support for your child and your family. The resources on this page can help you find strength and comfort as well as additional resource information.

Websites for families

Palliative Care for Children – This brochure, from the National Institute of Health, offers a thorough explanation of palliative care and how it can benefit your child and your family.

Download brochure

Get Palliative Care – Discover real stories of individuals and families to see how palliative care helps relieve symptoms and improve quality of life.

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Project Joy and Hope – Project Joy and Hope exists to enhance the quality of life for families and children who live with life-limiting conditions.

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Palliative Care Conversations Matter – Video provides a straightforward overview of pediatric palliative care for families.

View video

Courageous Parents Network – This amazing site is a destination created by families, for families, to support, guide and strengthen them as they care for very sick children.

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Support resources at Cook Childrens

Camps for Kids – Camps for Kids is a Cook Children's program that offers patients and families the opportunity to experience the power of camp.

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Health Care Notebook – Cook Children's FREE planner can help you keep track of everything, and for older children and teens, provides a way for them to take an active part in their care.

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Matustik Family Health Library – When you need information about your child's condition, you'll find our family health library and our librarians to be an excellent resource.

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We're here to help.

If your child is living with a complex, chronic, or life threatening illness, we can help. If you would like to schedule an appointment or refer a patient to our staff, please call our offices at 682-885-1116.