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Research plays a very important role in medicine around not only the world, but also right here at Cook Children's. We are making great strides in improving the lives of children now and for future generations.
If you are thinking about enrolling yourself or your child in a research study, we want you to have as much information about research as possible.
Here, you will find information about:
Like life, information can sometimes seem complicated. We are here to help keep it as simple as possible and keep the focus on the research that matters most, YOURS.
Children are not little adults. There is a lot of proof that children's growing brains and bodies can respond to medicines and treatments differently than adults respond. The way to get the best treatments for children is through research meant specifically for them.
Research studies contribute to improving children's health outcomes. Vaccines, treatments for children with cancer and other illnesses, and improving care for premature babies are a few examples of how research is helpful.
"Clinical research allows me to provide the healthcare of tomorrow for my patients today."
Donald Beam, MD, Medical Director, Hematology/Oncology
Research is the careful study and investigation for the purpose of finding and explaining new information. Research also includes the collecting of data about a topic such as a disease or illness.
Volunteers in research are participants.
Researchers, usually a doctor or a nurse, reach out to possible participants. The researcher gives the participant a consent form, which shares key facts about the research study. You will find out about the consent form in the Participating in Research: Your Rights section below.
The Institutional Review Board (IRB) reviews research done at Cook Children's. An IRB is a group of people tasked with protecting your rights and your child's rights as a research participant. The Cook Children's IRB membership includes, doctors, nurses, chaplains, and community members. The Cook Children's IRB follows all rules and regulations set out by multiple government agencies.
Some research studies have a separate group of people to review safety. This group reviews records from the research looking for problems or differences in results among different groups or participants. These results may show that the study causes unknown risks or that the study is showing early benefit to the participants
If you are considering taking part in a research study or allowing your child to take part in a research study, you should know that you and/or your child have certain rights.
Please note that the word "you" used below means the following:
A summary of your rights are below.
Informed consent is the process of giving a research study participant all of the facts about a trial. This happens before you agree to take part and during the course of the trial. Informed consent includes details about the treatments and tests you may receive and the benefits and risks they may have. The consent form supplies this information in writing.
Generally, informed consent will include the following:
Get answers to all your questions before agreeing to take part in the research study.
Signing the consent form does not take away any of your legal rights or prevent you from stopping the study later. It is your right to receive a copy of the signed consent form.
Cook Children's is conducting many different research studies. For more about our research please follow this link.
We know that you have many questions when thinking about enrolling a child in a research study. Children and adolescents have questions, too. Consider this helpful link for more information: Children and Clinical Studies.
For additional information about participating in research, please contact the Cook Children's Human Research Protection Program at HRPP@cookchildrens.org or 682-885-1764.