Hematology and Oncology Resources
Illness can be stressful for children and their family members, so Cook Children's offers a variety of ways to meet the emotional, psychological and spiritual needs of our patients and families.
Cook Children's Support Services include Child Life specialists who provide therapeutic, educational and recreational activities, licensed clinical and play therapists, psychologists and social services, as well as pastoral care dedicated to caring for the hematology, oncology and stem cell transplant patients. Translation services are also provided for non-English speaking patients and families.
Educational support is offered by two full-time RN educators who provide disease-specific information to patients and families. The educators also provide group and one-on-one training on how to care for the patient's central line prior to discharge.
Keeping track of all the information and resources surrounding your child’s medical team and care can be difficult. In order to help support our Hematology and Oncology families, the Family Advisory Council has created a family newsletter. Find all issues here, or for more information, reach out to the team at firstname.lastname@example.org.
For your convenience the following links can help you find tools and information to help you navigate your child's disease, patient and family support groups, camps with full medical support for patients, and some that support siblings, and even the whole family. Plus links to nutritional support, community and educational resources, and palliative care.
Customized Health Information Packet
Do you have questions about a diagnosis or condition? Let us help. Ask a Cook Children's librarian to prepare an information packet just for you.
Health Care Notebook
Parents of hematology and oncology patients have lots things to keep up with, appointments, treatments, medications, home care; our Health Care Notebook can help you keep track of everything, and for older children and teens, provides a way for them to take an active part in their care. The notebook is FREE and is available online.
The Children's Oncology Group Family Handbook
The Children's Oncology Group Family Handbook provides families with reliable information about treatment, support, and follow-up care for children and young people with cancer.
Hematology and Oncology Support Groups
Cook Children's offers support groups for kids with cancer or blood disorders and their family members.
Scholarships for Cancer Patients and Survivors
Information about scholarships available for AYAs.
Camps for Kids
Learn and play with others who share similar challenges. Our camps include Camp Sanguinity for patients with an oncology diagnosis. Camp Jubilee provides fun for patients with a diagnosis of sickle cell disease. Camp Ailihpomeh is designed for patients diagnosed with hemophilia.
Dietitians can help families learn how to provide the best nutrition during their child's cancer treatment to help them stay on track.
The Cook Children's Palliative Care program offers support for children with life-threatening conditions. The program also offers support to their families.
Cook Children's Oncology Bereavement program helps patients, families and care givers cope during the entire course of their disease.
We are here to help.
If your child has been diagnosed, you probably have lots of questions. We can help. If you would like to schedule an appointment, refer a patient or speak to our staff, please call our offices at 682-885-4007.