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class="interior-page"> <div class="top-content-wrapper"> <div class="content-wrapper"> <div class="document-header"> <h1 data-epi-type="title">Grupos de Apoyo</h1> </div> <div class="content-area" data-epi-type="content"> <div class="right-content"> <div class="score-accordion section-menu-wrapper"> <div class="score-accordion-panel"> <div class="panel-heading"> <div class="panel-title"> <button type="button" class="accordion-button" data-target="#sectionMenu" aria-expanded="false" aria-controls="accordion1"> In This Section </button> </div> </div><div id="sectionMenu" class="panel-collapse collapse"> <div class="panel-body"> <div class="bg-lightgrey"> <ul class="main"> <li class="section-menu-item "> <a href="/es/patients-families/" aria-label="Pacientes y Familias" class="GTMMENU" target="_self"> Pacientes y Familias </a> </li> </ul> <ul class="level-1"> <li class="section-menu-item "> <a href="/es/patients-families/covid-19/" aria-label="Citas, Visitas y Evaluación" class="GTMMENU" 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Familia </a> </li> <li class="section-menu-item "> <a href="/es/patients-families/medical-records/" aria-label="Solicite los Registros Médicos" class="GTMMENU" target="_self"> Solicite los Registros Médicos </a> </li> <li class="section-menu-item active"> <a href="/es/patients-families/support-groups/" aria-label="Grupos de Apoyo" class="GTMMENU" target="_self"> Grupos de Apoyo </a> <ul class="level-2"> <li class="section-menu-item "> <a href="/es/patients-families/support-groups/camps/" class="GTMMENU" target="_self"> Campamentos </a> </li> </ul> </li> <li class="section-menu-item "> <a href="/es/patients-families/language-services/" aria-label="Servicios de Asistencia Lingüística" class="GTMMENU" target="_self"> Servicios de Asistencia Lingüística </a> </li> <li class="section-menu-item "> <a href="/es/patients-families/education-resources/" aria-label="Recursos Educativos" class="GTMMENU" target="_self"> Recursos Educativos </a> </li> </ul> </div> </div> </div> </div> </div> </div> <div class="top-content"> <div class="rte-content"> <div class="rich-text"><p style="margin-top: 20px;"><img id="toggle" src="/siteassets/images/interface/language_toggle_esp.png" alt="Language toggle Spanish"></p> <p style="margin-bottom: 30px;"><img src="https://cookchildrens.org/SiteCollectionImages/Pacientes/grupos-apoyo.jpg" alt="Two mothers talking" width="1099" height="412"></p> <p>Ya sea que se enfrente a un camino médico a largo o corto plazo, no tiene que hacerlo solo. Los grupos de apoyo que se encuentran en Cook Children's ofrecen apoyo, comprensión, fortaleza y habilidades para sobrellevar la situación y ayudar tanto al paciente como a los miembros de la familia a manejar los desafíos de la atención y el estrés del diagnóstico, la afección y el tratamiento de su hijo. Dentro de la seguridad de estos grupos de apoyo, los miembros a menudo encuentran espacios de risa, curación y, cuando es necesario, un hombro en el que apoyarse.</p> <h4>Programa para adolescentes y adultos jóvenes (cáncer)</h4> <p>Los adolescentes y adultos jóvenes (AYA) a menudo se sienten fuera de lugar en una clínica pediátrica o para adultos. Nuestra visión es proporcionar un hogar médico justo para ellos en la cultura que brindamos. Los grupos se reúnen mensualmente y los eventos incluyen programas educativos y oportunidades para aprender más sobre los recursos disponibles. Además, las actividades sociales como picnics familiares, una fiesta de Navidad y eventos deportivos están disponibles para que los AYA puedan interactuar entre sí.</p> <p><span style="font-family: gibson-medium; font-size: 1.5rem; font-weight: inherit; letter-spacing: 0px;">Grupos de apoyo de endocrinología</span></p> <p>Apoyo y eventos para pacientes y familiares.</p> <p>Comuníquese comuníquese conequipo de Padres como aliados, <a class="GTMLINK" title="parents@cookchildrens.org" href="mailto:parents@cookchildrens.org">parents@cookchildrens.org</a> o al <a class="GTMPHONE" title="Call today" href="tel:+1-682-885-7123">682-885-7123</a>.</p> <h4>Grupo de apoyo de gastroenterología</h4> <p>Diseñado para ofrecer apoyo a todos los pacientes y familias de pacientes con cualquier diagnóstico gastrointestinal, excepto la enfermedad de Crohn y la colitis ulcerosa (ya hay un grupo separado para esas familias).</p> <p>El grupo se reúne el tercer martes de cada mes a las 6:00 p.m. en la sala de reuniones de apoyo familiar A.</p> <p>Para obtener más información, comuníquese con <a class="GTMLINK" title="raquel.chi@cookchildrens.org" href="mailto:raquel.chi@cookchildrens.org">Raquel Chi</a> o nuestro equipo de Padres como aliados, <a class="GTMLINK" title="parents@cookchildrens.org" href="mailto:parents@cookchildrens.org">parents@cookchildrens.org</a> o al <a class="GTMPHONE" title="Call today" href="tel:+1-682-885-7123">682-885-7123</a>.</p> <h4>Apoyo en hematología y oncología</h4> <p>Diseñado para que los padres encuentren apoyo y habilidades para sobrellevar el tratamiento de un trastorno de sangre o cáncer de un niño.</p> <p>Este grupo se reúne todos los jueves a las 11:00 a.m.</p> <p>Para obtener más información, comuníquese con <a class="GTMLINK" title="Mandy.Ebner@cookchildrens.org" href="mailto:Mandy.Ebner@cookchildrens.org">Mandy Ebner</a> al <a class="GTMPHONE" title="Call today" href="tel:+1-682-885-3587">682-885-3587</a>.</p> <h4>Programa Life After Cancer (la vida después del cáncer)</h4> <p>Los grupos se reúnen mensualmente y nuestros eventos incluyen programas de educación, oportunidades para aprender más sobre los recursos disponibles para los sobrevivientes y para establecer contactos con otros sobrevivientes a través de actividades sociales como comidas familiares, fiestas y eventos deportivos.</p> <p>Llame a Joyce Bender al <a class="GTMPHONE" title="Call today" href="tel:+1-682-885-2164">682-885-2164</a> para obtener más información sobre el programa Life After Cancer.</p> <h4>Listen Up!</h4> <p>El grupo ofrece apoyo e información para pacientes, padres y hermanos con cualquier tipo de pérdida auditiva.</p> <p>Para obtener más información, comuníquese con Kristi Reed, <a class="GTMLINK" title="kristi.reed@cookchildrens.org" href="mailto:Kristi.reed@cookchildrens.org">kristi.reed@cookchildrens.org</a> o al <a class="GTMPHONE" title="Call today" href="tel:+1-682-303-1252">682-303-1252</a>, o nuestro equipo de Padres como aliados, <a class="GTMLINK" title="parents@cookchildrens.org" href="mailto:parents@cookchildrens.org">parents@cookchildrens.org</a> o al <a class="GTMPHONE" title="Call today" href="tel:+1-682-885-7123">682-885-7123</a>.</p> <h4>Club L.O.V.E</h4> <p>Información sobre neuroblastoma y otros cánceres infantiles, así como apoyo para pacientes y familiares.</p> <p>El grupo se reúne el segundo martes de cada mes a las 6:00 p.m.</p> <p>Para obtener más información, comuníquese con Kelly Rand, <a class="GTMLINK" title="kelly.rand@cookchildrens.org" href="mailto:kelly.rand@cookchildrens.org">kelly.rand@cookchildrens.org</a>, o con el equipo de Padres como aliados, <a class="GTMLINK" title="parents@cookchildrens.org" href="mailto:parents@cookchildrens.org">parents@cookchildrens.org</a>, o al <a class="GTMPHONE" title="682-885-7123" href="/EPiServer/Cms/+1-682-885-7123">682-885-7123</a>.</p> <h4>Mended Little Hearts (pequeños corazones reparados)</h4> <p>Apoyo para padres de niños con defectos cardíacos congénitos. Este grupo dirigido por los padres proporciona una forma para que los padres se comuniquen entre ellos, compartiendo sus experiencias, preocupaciones y preguntas.</p> <p><strong>Reunión de Mended Little Hearts</strong></p> <p>Pabellón aula 5 (Centro Médico de Cook Children's, debajo de Starbucks). El grupo se reúne el segundo lunes de cada mes a las 6:30 p.m.</p> <p>Para obtener más información, comuníquese con nosotros al <a class="GTMPHONE" title="Call today" href="tel:+1-682-885-4720">682-885-4720</a>, o nuestro equipo de Padres como aliados en <a class="GTMLINK" title="parents@cookchildrens.org" href="mailto:parents@cookchildrens.org">parents@cookchildrens.org</a>.</p> <h4>Nefrología</h4> <p>Comuníquese con el departamento de Nefrología al <a class="GTMPHONE" title="Call today" href="tel:+1-682-885-4260">682-885-4260</a> para obtener información sobre eventos futuros.</p> <h4>Grupo de apoyo familiar de epilepsia</h4> <p>El grupo de apoyo familiar de epilepsia presenta temas generales de discusión que atraen a una variedad más amplia de diagnósticos, como los trastornos del movimiento. Después de cada presentación general mensual, las familias se dividirán en grupos más pequeños de diagnóstico específico para discutir experiencias personales, compartir sus historias y construir una red de apoyo adecuada. Alentamos y damos la bienvenida a los cuidadores de pacientes que desean aprender más sobre la condición neuronal de sus hijos mientras navegan por el abrumador laberinto de decisiones difíciles. Juntos, exploraremos opciones y crearemos mejores resultados.</p> <p>Nuestros grupos de apoyo ayudan a las familias a:</p> <ul> <li>Conocer a otros con experiencias similares.</li> <li>Construir una red de relaciones de apoyo.</li> <li>Desarrollar nuevas habilidades para ayudarlo a enfrentar los desafíos diarios.</li> <li>Recibir esperanza y aliento.</li> </ul> <h4>Fechas de la reunión del grupo de apoyo para la epilepsia:</h4> <ul> <li>TBD</li> </ul> <h4>Qué debe saber</h4> <p>El grupo de apoyo familiar de neurociencias está diseñado para pacientes, sus padres o cuidadores, así como hermanos de todas las edades.</p> <p>Cook Children's organiza actividades de apoyo familiar durante el año. Las reuniones del grupo de apoyo en el centro médico incluyen la cena, y las niñeras están disponibles para niños menores de 6 años. Las familias también tendrán la oportunidad de visitarse y compartir recursos entre ellas.</p> <p>Si está interesado en participar o desea obtener más información, llame al: 682-885-7763 o al 682-885-7887.</p> <h4>Dirección</h4> <p>Cook Children's Medical Center<br>801 Seventh Avenue<br>Fort Worth, Texas 76104<br>682-885-4000</p> <h4>Estacionamiento</h4> <p>El estacionamiento para padres de pacientes es gratuito. El estacionamiento para otros miembros de la familia y visitantes cuesta $ 1 por hora.</p> <p>El acceso para discapacitados al centro médico está disponible desde el estacionamiento del primer y tercer piso.</p> <p><a class="btn btn-info GTMBUTTON" title="Parking directions" href="/es/medical-center/fort-worth/maps-wayfinding/">Direcciones para estacionamiento en el centro médico</a></p> <h4>Recursos educativos</h4> <ul> <li><a class="GTMLINK" title="Family Health Library" href="/es/medical-center/fort-worth/family-support/family-health-library/">Biblioteca de salud familiar de Cook Children's</a></li> <li><a class="GTMLINK" title="Epilepsy Foundation" href="http://www.eftx.org/" target="_blank" rel="noopener">Epilelpsy foundation</a></li> <li><a class="GTMLINK" title="Texas Neurofibromatosis Foundation" href="http://www.texasnf.org/" target="_blank" rel="noopener">Texas Neurofibromatosis Foundation</a></li> <li><a class="GTMLINK" title="Tourette Association" href="http://www.tourettetexas.org/fortworth" target="_blank" rel="noopener">Tourette Association</a></li> </ul> <h4>Programa Sib2Sib</h4> <p>El programa Cook Children's Sib2Sib™ brinda servicios a hermanos de niños que viven con una enfermedad crónica o una discapacidad que les cambia la vida, que son o han sido pacientes en el Centro Médico Cook Children's.</p> <p>Las actividades, eventos y reuniones incluyen:</p> <ul> <li><strong>Camp Courage y Camp Courage Teen</strong><br>Estas son aventuras llenas de diversión lejos del centro médico. Brindan oportunidades para crecer y construir relaciones con otros hermanos.</li> <li><strong>Excursiones de adolescentes y adultos jóvenes</strong><br>Las salidas divertidas les dan a los adolescentes y adultos jóvenes un descanso saludable.</li> <li><strong>Sibshops</strong><br>La historia de Sibshops abarca más de 25 años. Fundado por Don Meyer, un pionero en el movimiento de hermanos, el modelo Sibshop está dedicado a las preocupaciones de por vida de hermanos y las personas con necesidades especiales. El Sibshop en Cook Children’s está diseñado para atender a los hermanos de los pacientes que viven con una enfermedad crónica o una lesión que cambia la vida. Actualmente hay más de 320 Sibshops en todo el mundo, incluido uno aquí en Cook Children's en Fort Worth, Texas. Para obtener más información sobre la historia de Sibshops y lo que ofrecen, visite <a class="GTMLINK" title="Sibling apoyo" href="http://siblingsupport.org/" target="_blank" rel="noopener" shape="rect">siblingsupport.org</a>.<br><br>Su hijo puede unirse al Cook Children's Sibshop de Cook Children's para tener la oportunidad de conocer a otros hermanos, discutir inquietudes comunes exclusivas de los hermanos de niños con enfermedades crónicas o discapacidades que cambian la vida, jugar, disfrutar de las artes y manualidades y divertirse. Es una oportunidad para celebrar a los hermanos por quienes son y todo lo que hacen.</li> </ul> <p>Para obtener más información sobre el programa o para registrarse en la lista de correo, llame al <a class="GTMPHONE" title="682-885-5872" href="/EPiServer/Cms/+1-682-885-5872">682-885-5872</a>, hable con el especialista de Child Life de su hijo o envíe un correo electrónico a <a class="GTMLINK" title="sibprogram@cookchildrens.org" href="mailto:sibprogram@cookchildrens.org">sibprogram@cookchildrens.org</a>.</p> <h4>SOS: Enfoque en la escoliosis</h4> <p>Este grupo ofrece apoyo y eventos para pacientes y familiares.</p> <p>Comuníquese con <a class="GTMLINK" title="amy.collins@cookchildrens.org" href="mailto:amy.collins@cookchildrens.org">Amy Collins</a> al <a class="GTMPHONE" title="Call today" href="tel:+1-682-885-2764">682-885-2764</a> para obtener información adicional sobre nuestros eventos y programas de grupos de apoyo. También puedes <a class="GTMLINK" title="Learn more" href="/EPiServer/CMS/~/link/51bde1917af949978d56f9aba8b55d7e.aspx">aprender más aqui</a>.</p> <h4>Grupo de apoyo para accidentes cerebrovasculares</h4> <p>Este grupo ofrece apoyo y eventos para familias y cuidadores de niños que han sufrido un derrame cerebral.</p> <p>El grupo se reúne trimestralmente.</p> <p>Comuníquese con Gabriela Duran al <a class="GTMPHONE" title="Call today" href="tel:+1-682-885-1311">682-885-1311</a> para obtener información adicional sobre nuestros eventos y programas de grupos de apoyo. También puede enviar un correo electrónico a <a class="GTMLINK" title="gabriela.duran@cookchildrens.org" href="mailto:gabriela.duran@cookchildrens.org">gabriela.duran@cookchildrens.org</a>.</p> <h2>Grupo de apoyo para el trauma</h2> <p>Cook Children’s organiza un grupo de apoyo mensual para niños de 6 años en adelante, junto con sus cuidadores y hermanos, para ayudar a abordar algunos de los efectos duraderos que un niño podría estar experimentando en su hogar o vida personal después de un accidente o evento traumático. El objetivo del grupo de apoyo es ofrecer a los niños y sus familias la oportunidad de procesar sus experiencias y conocer a otros niños que han pasado por situaciones similares, mientras se divierten juntos. Este grupo también proporciona oportunidades educativas y oradores invitados para padres y cuidadores, cubriendo una variedad de temas relacionados con el trauma.</p> <p>Si estás interesado en participar o deseas obtener más información, por favor envía un correo electrónico a <a title="traumasupport@cookchildrens.org" href="mailto:traumasupport@cookchildrens.org">traumasupport@cookchildrens.org</a> o llama al <a title="682-885-7255" href="tel:+1-682-885-7255">682-885-7255</a>. También puedes <a title="Programa de Apoyo para el Trauma" href="/es/medical-center/fort-worth/family-support/trauma-support-program/">obtener más información aquí.</a></p></div> </div> </div> </div> </div> </div> </div> </main> <script defer="defer" src="/Util/Find/epi-util/find.js"></script> <script> document.addEventListener('DOMContentLoaded',function(){if(typeof FindApi === 'function'){var api = new FindApi();api.setApplicationUrl('/');api.setServiceApiBaseUrl('/find_v2/');api.processEventFromCurrentUri();api.bindWindowEvents();api.bindAClickEvent();api.sendBufferedEvents();}}) </script> </main> <footer class="footer" > <div class="footer-wrapper bg-lightgrey"> <div data-react-component="FooterNavigation" data-props='{"upperFooter":{"upperFooterCol1":[{"childPages":[{"highlighted":true,"indented":false,"title":"Our Promise","link":"/es/about/promise-report/","linkAriaLabel":"Our 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