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Support Groups

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For patients, parents and family members, coping with a serious illness, injury, or chronic medical condition can feel scary and lonely. The support groups found at Cook Children's can help.

Whether you are facing a long- or short-term medical journey, you don't have to do it alone. The support groups found at Cook Children's offer comfort, understanding, strength and coping skills to help both the patient and family members manage the challenges of care and the stress of your child's diagnosis, condition and treatment. Inside the safety of these support groups, members often find laughter, healing and when needed, a shoulder to lean on.

Epilepsy, Neurofibromatosis and Tourette's support group changes!

We are combining our epilepsy, neurofibromatosis and Tourette support groups under the umbrella of a new group: Neurosciences Family Support Group. Our vision is to broaden the support we offer across a wider range of neurologic conditions.

Adolescent and Young Adult Program (cancer)

AYAs often feel out of place in a pediatric or adult clinic. Our vision is to provide a medical home just for them in the culture we provide. Groups meet monthly and events include education programs and opportunities to learn more about available resources. Additionally, social activities such as family picnics, a Christmas party and sporting events are available so AYAs can network with each other.

Crohn's Disease and Ulcerative Colitis

This group meets on the third Tuesday of every month at 6:00 p.m.

For more information, contact Brenda Sonnier, brenda.sonnier@cookchildrens.org, or our Parents as Partners team, parents@cookchildrens.org or 682-885-7123.

D4AYA program

D4AYA is a support group for teens living with neurological or rheumatological chronic conditions. In addition to living with a neuro or rheum diagnosis, participants in D4AYA will be:

  • Between the ages of 13 and 20
  • Developmentally a teen
  • Able to communicate with friends (verbally or augmented)
  • Able to both give and receive support

Activities will include guest speakers, creative arts, transitional education, and processing through games and small group discussions.

To register or for more information, contact Kat Davitt at 682-885-5872 or kat.davitt@cookchildrens.org.

2018 meeting dates:

  • February 1
  • April 5
  • August 16
  • October 11
  • December 13 - holiday party

The group will meet in the Pavilion classrooms of the main building from 6-8 pm. These meeting will be drop-off meetings, just for the teens. A light dinner will be provided.

Endocrinology support groups

Support and events for patients and family members.

Please contact 682-885-7960 for additional information on our events and support group programs.

GI Support Group

Designed to offer support to all patients and families of patients with any gastrointestinal diagnosis except for Crohn's Disease and Ulcerative Colitis (there's a separate group for those families).

Group meets on the third Tuesday of every month at 6:00 p.m in Family Support meeting room A.

For more information, please contact Raquel Chi or our Parents as Partners team, parents@cookchildrens.org or 682-885-7123 .

Hematology and Oncology support

Designed for parents to find support and coping skills when dealing with a child's blood or cancer disorder.

This group meets every Thursday at 11:00 a.m.

For more information, please contact Mandy Ebner at 682-885-3587.

Life After Cancer program

Groups meet monthly and our events include education programs, opportunities to learn more about resources available for survivors and to network with other survivors through social activities like family picnics, parties and sporting events.

Call Joyce Bender at 682-885-2164 for more information on the Life After Cancer program.

Links of Hope (emotions and behavior)

Links of Hope in Fort Worth

Links of Hope provides adult care-givers of children with behavioral and emotional concerns such as ADHD, depression, OCD, ASD, with support and education. Our Links of Hope support group is led by a licensed social worker and there is no charge for attendance. This group is led by a licensed professional counselor dedicated to identifying services and providing resource information and educational opportunities.

Groups meet on the 4th Tuesday of the month at 5 p.m. in Cook Children's Medical Center's South Tower, Classroom 1163, next to Goodies To Go. These group sessions are completely free of charge.

For more information, please contact us at linksofhope@cookchildrens.org. Please note that this email inbox is not monitored 24 hours a day. If you think you may have a medical or mental health emergency, call your doctor, go to the emergency department, or call 911 immediately.

Dinner will be provided if you RSVP. Child care is not currently available.

Download brochure

Behavioral Health resources

Links of Hope in Southlake

Links of Hope provides adult care-givers of children with behavioral and emotional concerns such as ADHD, depression, OCD, ASD, with support and education. Our Links of Hope support group is led by a licensed social worker and there is no charge for attendance. For additional information, you may contact us at LinksOfHope-Southlake@CookChildrens.org. Please note that this email inbox is not monitored 24 hours a day. If you think you may have a medical or mental health emergency, call your doctor, go to the emergency department, or call 911 immediately.

Group meets on the 2nd Tuesday of the month from 9:30-10:30 at Southlake Urgent Care and Pediatric Specialties. Childcare is not provided.

Download brochure

Listen Up!

The group offers support and information for patients, parents and siblings with any type of hearing loss.

For more information, contact Kristi Reed, kristi.reed@cookchildrens.org or 682-303-1252, or our Parents as Partners team, parents@cookchildrens.org or 682-885-7123.

L.O.V.E. Club

Information on neuroblastoma and other childhood cancers, as well as support for patients and families.

Group meets on the second Tuesday of the month at 6:00 p.m.

For more information, please contact Kelly Rand, kelly.rand@cookchildrens.org, or our Parents as Partners team, parents@cookchildrens.org, or 682-885-7123.

Mended Little Hearts

Support for parents of children with congenital heart defects. This parent-led group provides a way for parents to talk one-on-one with each other, sharing their experiences, concerns and questions.

Mended Little Hearts meeting

Pavilion classroom 5 (Cook Children's Medical Center, below Starbucks)
Group meets the second Monday of every month at 6:30 p.m.

For more information, please contact us at 682-885-4720, or our Parents as Partners team at parents@cookchildrens.org.

Nephrology

Please contact the Nephrology department at 682-885-4260 for information on future events.

Neurosciences Family Support Group

Neurosciences Family Support Group presents general topics for discussion that appeal to a wider variety of diagnoses, such as movement disorders. Following each monthly general presentation, families will break-out into smaller diagnosis-specific groups to discuss personal experiences, share their stories, and build an appropriate support network. We encourage and welcome caregivers of patients who want to learn more about their child's neural condition while navigating the overwhelming maze of difficult decisions. Together, we will explore options and create better outcomes.

Our support groups help families:

  • Meet others with similar experiences.
  • Build a network of supportive relationships.
  • Develop new skills to help you deal with daily challenges.
  • Receive hope and encouragement.

2019 support group meeting dates:

  • July 11
  • August 8 – Back to School Bash
  • November 14
  • December 12 – holiday party

What to know

The Neurosciences Family Support Group is designed for patients (ages 0-18), their parents or caregivers, as well as siblings of all ages to attend.

Cook Children's hosts family support activities during the year. Support group meetings at the medical center include dinner, and sitters are available for children under the age of 6. Families will also have an opportunity to visit with one another and share resources with each other.

If you are interested in participating or would like more information, please call: 682-885-7763 or 682-885-7887.

Address

Cook Children's Medical Center
801 Seventh Avenue
Fort Worth, Texas 76104
682-885-4000

Parking

Parking for parents of patients is free. Parking for other family members and visitors is $1 per hour.

Handicap access to the medical center is available from the first and third floor parking garage.

Medical Center parking directions

Educational resources

Sib2Sib program

Cook Children's Sib2Sib™ program provides services to siblings of children living with a chronic illness or life-changing disability, who are or have been patients at Cook Children's Medical Center.

Activities, events and meetings include:

  • Camp Courage and Camp Courage Teen
    These are fun-filled adventures away from the medical center. They provide opportunities for growth and building relationships with other siblings.
  • Teen and young adult field trips
    Fun outings give teens and young adults a healthy break.
  • Sibshops
    The history of Sibshops spans more than 25 years. Founded by Don Meyer, a pioneer in the sibling movement, the Sibshop model is dedicated to the life-long concerns of brothers and sisters of people with special needs. The Sibshop at Cook Children’s is designed to serve siblings of patients living with a chronic illness or a life changing injury. There are currently over 320 Sibshops worldwide, including one right here at Cook Children's in Fort Worth, Texas. To learn more about the history of Sibshops and what they offer check out siblingsupport.org.

    Your child can join the Cook Children's Sibshop for opportunities to meet other siblings, discuss common concerns unique to siblings of children with a chronic illness or life-changing disability, play games, enjoy arts and crafts, and have fun. It's a chance for us to celebrate siblings for who they are and all they do.

To learn more about the program or to register for the mailing list, call 682-885-5872, speak to your child's Child Life specialist or you can email sibprogram@cookchildrens.org.

SOS: Spotlight on Scoliosis

This group offers support and events for patients and family members.

Please contact Amy Collins at 682-885-2764 for additional information on our events and support group programs. You can also learn more here.

Stroke Support Group

This group offers support and events for families and caregivers of children that have suffered from a stroke.

The group meets quarterly.

Please contact Gabriela Duran at 682.885.1311 for additional information on our events and support group programs. You can also email gabriela.duran@cookchildrens.org.

Trach

Support for parents whose children are in the Cook Children's NICU, PICU, or inpatient units with a tracheostomy.

Group meets on the fourth Monday of every month.

For more information, please contact Renee Lavelle, Jennifer Thomas, Lindsay Sikes or our Parents as Partners team, parents@cookchildrens.org or 682-885-7123.