Rare Cancers and Tumors

There are more than 200 known types of cancer, many of which are very rare. Fortunately, the Cook Children's Cancer Center team has the knowledge and expertise to treat even the rarest cancers found in children, teens and young adults.

Cancer in children is rare, and some are hardly ever seen or usually appear only in adults. At the Cook Children's Cancer Center, our pediatric specialists understand the unique needs of each child based on diagnosis, age and development. Our resources and access to research and clinical trials as well as our many collaborations mean that your child is surrounded by advanced medical care. And a team that truly cares about the most important thing of all ... the well-being of your child.

What we treat

We treat rare tumors including:

Germ cell tumors
Nasopharyngeal carcinoma
Melanoma
Adrenocortical carcinoma
Colon cancer
Breast cancer in children
Desmoplastic Small Round Cell tumor
Desmoid tumors and any other rare tumors

These cancers may require a range of therapies, including surgery, radiation therapy, chemotherapy, stem cell therapy, or a combination of these treatments.

A team approach

We offer compassionate multidisciplinary treatment for children and adolescents with rare tumors through the expertise of specialists with an intense collaborative treatment approach. For very rare tumors if a clinical trial is not available or in a patient's best interest, treatment is individualized with the expertise of our whole team in addition to consultation with additional experts throughout the country. Our goal is to provide family-centered care utilizing the most advanced treatment, cutting edge research, and family preference to obtain best chances for cures.

We are here to help.

If your child has been diagnosed, you probably have lots of questions. We can help. If you would like to schedule an appointment, refer a patient or speak to our staff, please call our offices at 682-885-6152.

Ask a librarian

Finding health information you can trust can be confusing and overwhelming. Let us help. A Cook Children's librarian can send you up to date information from reliable sources concerning your child's condition, procedure, medicine or other health related questions.

Ask a librarian