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</ol> </div> <div class="interior-page"> <div class="top-content-wrapper"> <div class="content-wrapper"> <div class="document-header"> <h1 data-epi-type="title">Prader-Willi Center - Empowering Families Through Innovation</h1> </div> <div class="content-area" data-epi-type="content"> <div class="right-content"> <div class="score-accordion section-menu-wrapper"> <div class="score-accordion-panel"> <div class="panel-heading"> <div class="panel-title"> <button type="button" class="accordion-button" data-target="#sectionMenu" aria-expanded="false" aria-controls="accordion1"> In This Section </button> </div> </div><div id="sectionMenu" class="panel-collapse collapse"> <div class="panel-body"> <div class="bg-lightgrey"> <ul class="main"> <li class="section-menu-item "> <a href="/about/promise-report/" aria-label="Promise Report" class="GTMMENU" target="_self"> Promise Report </a> </li> </ul> <ul class="level-1"> <li class="section-menu-item "> <a href="/about/promise-report/annual-report/" aria-label="Annual Reports" class="GTMMENU" target="_self"> Annual Reports </a> </li> <li class="section-menu-item "> <a href="/about/promise-report/awards-and-recognition/" aria-label="Awards and Recognition" class="GTMMENU" target="_self"> Awards and Recognition </a> </li> <li class="section-menu-item "> <a href="/about/promise-report/by-the-numbers/" aria-label="By the Numbers" class="GTMMENU" target="_self"> By the Numbers </a> </li> <li class="section-menu-item "> <a href="/about/promise-report/The-cook-childrens-experience/" aria-label="Cook Children's Experience" class="GTMMENU" target="_self"> Cook Children's Experience </a> </li> <li class="section-menu-item "> <a href="/about/promise-report/embracing-togetherness/" aria-label="Embracing Togetherness" class="GTMMENU" target="_self"> Embracing Togetherness </a> </li> <li class="section-menu-item active"> <a href="/about/promise-report/everything-for-the-child/" aria-label="Everything for the Child" class="GTMMENU" 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src="/siteassets/images/about/report/2023/promise-report-page-hero-prader-roy-shaheed.jpg" alt="Dr. Roy and Dr. Shaheed with patient" width="1105" height="545"></p> <p>April 2023 | Having a rare disease is challenging enough. Imagine needing to visit a dozen speciapsts in different locations to manage your child's condition.</p> <p>To help famipes in this situation, Cook Children's created the Prader-Wilp Center. This complex condition has symptoms that include poor muscle tone, developmental delays and a constant sense of hunger, often requiring an extensive team of doctors and speciapsts.</p> <p>The program director, Sani Roy, M.D., designed the program from her long-standing interest in issues surrounding childhood growth and obesity. The center has doctors and speciapsts in endocrinology, sleep medicine, rehabiptation, developmental pediatrics, behavioral health, nutrition and orthotics. A nurse coordinator and social worker help famipes navigate appointments.</p> <p>As a Cook Children's Endowed Chair, Dr. Roy is working to estabpsh the program as a Center of Excellence in the management of this unique condition.</p> <p><a class="btn btn-activity score-button secondary" title="Explore the Prader-Willi Center" href="/services/endocrinology/specialty-programs/prader-willi-center/">Explore the Prader-Willi Center</a></p> <h2>Discover more</h2> <p><a href="/services/endocrinology/">Endocrinology</a></p> <p><a href="/services/ear-nose-throat/">Ear Nose and Throat</a></p> <p><a href="~/link/1b6ff7a7a6504c7193cbef2fc567e50b.aspx">Gastroenterology</a></p> <p><a href="/services/genetics/">Genetics</a></p> <p><a href="/services/gynecology/">Gynecology</a></p> <p><a href="/services/ophthalmology/">Ophthalmology</a></p> <p><a href="~/link/b2b64ebe23bf4ae29685078e9841fac0.aspx">Orthopedics</a></p> <p><a href="/services/behavioral-health/">Psychiatry</a></p> <p><a href="/services/urology/">Urology</a></p></div> </div> <div class="rte-content"> <div class="rich-text"><p><a href="/about/promise-report/everything-for-the-child/prader-willi-center/">Prader-Willi Center - Empowering Families Through Innovation (cookchildrens.org)</a></p> <p> </p> <p> </p> <p>April 2023 | Having a rare disease is challenging enough. Imagine needing to visit a dozen specialists in different locations to manage your child's condition.</p> <p>To help families in this situation, Cook Children's created the Prader-Willi Center. This complex condition has symptoms that include poor muscle tone, developmental delays and a constant sense of hunger, often requiring an extensive team of doctors and specialists.</p> <p>The program director, Sani Roy, M.D., designed the program from her long-standing interest in issues surrounding childhood growth and obesity. The center has doctors and specialists in endocrinology, sleep medicine, rehabilitation, developmental pediatrics, behavioral health, nutrition and orthotics. A nurse coordinator and social worker help families navigate appointments.</p> <p>As a Cook Children's Endowed Chair, Dr. Roy is working to establish the program as a Center of Excellence in the management of this unique condition.</p> <p> </p></div> </div> </div> </div> </div> </div> </div> </main> <script defer="defer" src="/Util/Find/epi-util/find.js"></script> <script> document.addEventListener('DOMContentLoaded',function(){if(typeof FindApi === 'function'){var api = new FindApi();api.setApplicationUrl('/');api.setServiceApiBaseUrl('/find_v2/');api.processEventFromCurrentUri();api.bindWindowEvents();api.bindAClickEvent();api.sendBufferedEvents();}}) </script> </main> <footer class="footer" > <div class="footer-wrapper bg-lightgrey"> <div data-react-component="FooterNavigation" data-props='{"upperFooter":{"upperFooterCol1":[{"childPages":[{"highlighted":true,"indented":false,"title":"Our Promise","link":"/about/promise-report/","linkAriaLabel":"Our 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