Multiple Sclerosis and Demyelinating Disease Clinic
The Cook Children's Multiple Sclerosis and Demyelinating Disease Clinic is a recognized center in Texas by the National Multiple Sclerosis Society. This center is one of three clinics specifically offering complete care for children with multiple sclerosis and demyelinating disease in Texas.
Our clinic provides all approved options for treatment in multiple sclerosis and demyelinating diseases, including oral, injectable and infusible medications. For children who receive their medication through infusion, we arrange for them to receive their medications through the Cook Children's infusion center. Our expanded clinic provides medical and nonmedical treatments for the secondary symptoms of these diseases, including fatigue, spasticity, muscle weakness, school-related difficulties, mood issues or any side effects of medications. In addition, our clinic provides social support for patients and families, facilitates communication with community resources and coordinates referrals for any other specialists needed for care.
Why choose our neurosciences team?
At Cook Children's Multiple Sclerosis and Demyelinating Disease Clinic collaboration is more than a word. We know that it takes real teamwork to provide the best care for your child and your family. We bring together a specialized group of experts working together to deliver the most complete care plan possible, including:
- Pediatric neurologist
- Clinical neuropsychology
- Neuroradiology
- Clinical nursing
- Nurse educator
- Child Life specialist
- Neurosciences department social worker
- Local and national resources of the National Multiple Sclerosis Society
We also work closely with Cook Children's hematology and oncology infusion center for administration of medications if needed; the Dodson Radiology Center for imaging and a neuroradiologist, who reviews all relevant imaging studies.
Our goal is to provide access to the specialists and support your child and your family need to manage their disease and ease their symptoms, all working together to create the best possible outcome for your child and for your family.
Meet our team
The medical team at Cook Children's Multiple Sclerosis and Demyelinating Disease Clinic are experts in the diagnosis, treatment, and ongoing research of MS and other DD conditions. Because of that, we are able to provide advanced care found only in a few pediatric settings across the state, nation and globe. Our team approach includes the patient, parents and caregivers because it allows us to meet your child's specific needs and, from childhood to adulthood, deliver the highest quality of care every day.
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Juli Ramirez
Neurology Research Coordinator
Resources and education
- Health care professionals
- Camps for kids
- Neurosciences Family Advisory Council
- Neuro Support Group
- Sibshops sibling support group
- Youth Advisory Council a.k.a. the YAC-PAC
- Kids Get MS Too: A Handbook for Parents Whose Child or Teen has MS is an informational handbook containing a wide range of information pertaining to pediatric MS. The handbook was written by specialists in childhood MS.
- Managing School-Related Issues: A Guide for Parents with a Child or Teen Living with MS provides parents with the tools and resources to be their child's best advocate in the school system. The guide includes a discussion on the potential impact of MS in the school setting, recommended accommodations and modifications, transition issues, and sample 504 plans and request for academic accommodations.
- Students with MS & the Academic Setting: A Handbook for School Personnel is an informational guide for school staff working with children and teens with MS. The handbook includes a discussion on the issues children and teens with MS may face, recommended accommodations and modifications in the school setting, transition issues, as well as basic information on MS.
- Your Education Rights as a Student with MS Every person has a right to strive for his or her education goals despite having a disability. This brochure explains the differences in rights and responsibilities both for students and the schools they attend.
- Virtual Community for Parents - The Network connects parents through an online group, Pediatric MS Online Group, where you can share concerns and information. Please visit msconnection.org to get started.
- Keep Smyelin, this newsletter from the National Multiple Sclerosis Society is a fun way for kids to learn about MS.
We're here to help.
If your child has been diagnosed, you probably have lots of questions. We can help. If you would like to schedule an appointment, refer a patient or speak to our staff, please call our offices at 682-303-2650.