Muscular Dystrophy Association Clinic
The Muscular Dystrophy Association (MDA) Clinic at Cook Children's specializes in the diagnosis, treatment and follow-up care of children, teens and young adults with neuromuscular disease.
The MDA sponsors adult and pediatric neuromuscular clinics at Cook Children's Neurosciences Center. Directed by Warren Marks, M.D., the MDA clinic provides complete care to patients and families, including access to social services, genetic counseling, physical therapy and rehabilitation.
Conditions we treat
Neuromuscular diseases are genetic, passed down from parent to child. Some of these conditions are evident at birth. Others may appear as early as infancy or as late as middle age, or even older. Some of the more common conditions we treat are:
- Charcot-Marie-Tooth disease
- Congenital myopathies
- Duchenne/Becker muscular dystrophy
- Myasthenia gravis
- Spinal muscular atrophy
Depending on the diagnosis, neuromuscular disease can be mild to extremely complex. For this reason, our clinic works together with a group of specialists in our Neurosciences Center and across the Cook Children's system. Your child's team may include the following:
- Neuromuscular specialist
- Neurorehabilitation specialist
- Physical therapist
- Occupational therapist
- Social worker
- Child Life specialist
- Patient liaison
- MDA representative
To ensure access to needed care, MDA offers support for patients without insurance coverage to the extent possible. Representatives from the MDA attend clinics and provide patient education and to help promote MDA activities, research and patient support groups.
The MDA offers support for patients without insurance coverage to the extent possible. Representatives from MDA attend clinics to provide patient education and to help promote MDA activities, research and patient support groups.
We're here to help.
If your child has been diagnosed, you probably have lots of questions. We can help. If you would like to schedule an appointment, refer a patient or speak to our staff, please call our offices at 682-885-2500.